The National Living Organ Donors’ April 2013 Support Group
We are re-launching our National Living Organ Donors’ Support Group meeting Wednesday evening, April 10 @ 6:30. This will be an open group, meaning anyone and everyone is invited to attend. There will not be a specific agenda. We want everyone to feel free to discuss anything they wish.
This is open to all who would like to attend. We are hoping to attract not only living organ donors, but organ recipients, donor families, medical professionals and anyone who would like to know anything about organ donation.
Our host is Healthtrax Fitness & Wellness,628 Hebron Avenue,Glastonbury,CT06033. They have graciously offered the use of their conference room for our purpose. Their conference room is located on the second floor, next to the stairs.
Our continuing schedule will be as follows:
Wednesday, May 8, 2013
Wednesday, June 12, 2013
Wednesday, July 10, 2013
All meeting will start at 6:30.
We hope that, starting with April, the group will meet on the second Wednesday of each month.
Please bring whatever you care to drink (and/or eat).
If you’ve read this much so far, thank you for your interest and please pass this along to anyone whom you might think this would be of interest to. We do hope to attract many people not familiar with organ donation, but have many questions about it.
Thursday, November 8, Julie Chambers donated one of her kidneys to Kim, a person she did not know before she started the process. Here is their story.
Julie’s kidney started working in Kim even before the transplant surgery was completed. Both Julie and Kim are recovering well. In fact, Julie’s recovery is so remarkable that she went home today.
Here is a pre-op picture of Julie with her friend Paula waiting to be called in.
Here is Julie less than 48hrs. post op. and on her way home!
It was 5 years ago today…
Harry Kiernan gave his kidney away.
Eileen received Harry’s kidney on June 6, 2007 at Hartford Hospital. They met one month later.
Today we visited the PKD Foundation in Kansas City, MO. The mission of the PKD Foundation is to promote programs of research, advocacy, education, support and awareness in order to discover treatments and a cure for polycystic kidney disease and improve the lives of all it affects.
Since 1982, the PKD Foundation has been building to this moment – this pivotal tipping point – when treatments for PKD are truly, finally, within reach. The progress has been so great
Continue reading PKD Foundation
Today we visited the Children’s Organ Transplant Association (COTA) in Bloomington, Indiana. COTA was established in 1986 to help children and young adults who need a life-saving transplant by providing fundraising assistance and family support. An incredible 85% of all funds raised go to direct aid for these families.
While there, we also met Stacey and her son Ryan. Ryan was the youngest person ever put on dialysis, 6 days old, due to kidney failure at birth. With COTA’s
Continue reading Children’s Organ Transplant Association (COTA)
Today, we visited Dr. Steven Badylak at The McGowan Institute for Regenerative Medicine @ University of Pittsburgh Medical Center. With regenerative medicine, Dr. Badylak and his team are very close to being able to regenerate a life saving organ from one’s own stem cells. This would be a totally organic organ that the body would not fight, therefore eliminating the need for anti-rejection medications. With the proper funding, this could be accomplished in as little as five years!
Continue reading The McGowan Institute for Regenerative Medicine
Today we revisited the Family House in Pittsburgh. Marlane, the young woman still waiting for a liver transplant has been a resident in waiting for 20 months. Pictured below is a friend whom is in the final stages of tests to be her donor. www.familyhouse.org
Corrina & Marlane
We are looking for living donors, organ recipients and future recipients currently on the waiting list. We would like to include you and your story on our web site featuring stories for each transplant group from around the country.
Of course our facebook page would also include these stories. https://www.facebook.com/nlodf
If you are a living donor, organ recipient or future recipients currently on the waiting list for an organ, we would like to invite you to have your story posted
Continue reading Looking For Organ Donation Stories
Today we visited with Dan Bonner, author of ‘GIFTED, An Extraordinary Journey Through Illness and Liver Transplantation’. Another very grateful organ transplant recipient.
Dan Bonner 'Gifted'
Guest speaker at the Organ Donation Flag Raising Ceremony & Celebration of Life Program this morning at University of Pittsburgh Medical Center.
UPMC Celebration of Life Program